IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

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  • eris
    Giving birth to a star
    • Aug 2005
    • 703

    #31
    Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

    As to be expected, second hand medical knowledge regarding Barkode is getting a little bit garbled along the way but is mostly still true and good. Here's a little note from him.

    "Saw a misleading post today about my lung issues, need to clarify that there are a number of things going on in tandem, PNH being the core diagnosis. I also have a partially collapsed left lung and growths inside. Still no diagnosis on that, still in hospital. Will try to write a big note soon. Lots of things need clarification. Appreciate everyone's support more than I can express right now."

    Keep up the good thoughts, deeds, and actions, folks, he's not out of the woods yet but it is a good sign he was able to check in and send a note your way.

    I think this might be a good time to say I don't speak to him personally, nor do I speak in person to any of the people that have spent anxious days by his bedside. I merely repost updates and information I receive along the way from people that do see him or speak to him as they share online. I do not speak FOR him or anyone who is intimately involved in the process. I only monitor the update tumblr and his facebook and update what seems needful. Anyone is free to chime in with additional information or correct anything I might share if it is incorrect.

    As always, if you can, give blood, to a Kaiser direct replacement donor site if you can, to Red Cross if you can't, and consider being a bone marrow donor.
    "They-Who-Were-Google are no longer alone. Now we are all Google."

    Comment

    • Grendel
      Member
      • Aug 2006
      • 91

      #32
      Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

      Originally posted by Deviant Ollam
      does Be The Match have outdated lifestyle rules and regs like Red Cross does for blood donation?
      A lot of the rules surrounding donating blood do not hold true with donating marrow - there are a list of things that can prevent someone from being selected to donate stem cells, and a list can be found below. However, there is a medical examination process for potential donors that plays an important role in deciding whether or not someone can donate.

      But again, the rules for donating blood do no translate to donating marrow... common question / misconception.

      Here's a link that identifies potential disqualifications:

      http://www.marrow.org/JOIN/Med_Guide...oin/index.html

      Comment

      • Grendel
        Member
        • Aug 2006
        • 91

        #33
        Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

        Originally posted by SmittyHalibut
        I registered with the bone marrow folks at DefCon last year. Does that automatically get me into the pool for Matt, or should I register again somewhere else?
        Yes - you are automatically in the pool for Matt, and anyone else in need of a marrow donor. No need to register again elsewhere - you're in the system. I received my call/letter to donate marrow five years after I signed up, so they definitely keep you around and in the mix.

        Comment

        • Jayson.Street
          Member
          • Jul 2011
          • 37

          #34
          Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

          A #bloodKode update we are setting up final details for the blood drive at #DEFCON (still not 100% certain) PLUS a way for ppl who have already given to be included in a raffle for prizes at #DEFCON stay tuned for more info hopefully soon! ~:-)

          Also if you are a speaker and/or author who would like to join in the drive with prizes or getting a mohawk as well please let me know

          Thanks

          Comment

          • HighWiz
            Death
            • Jun 2007
            • 655

            #35
            Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

            Originally posted by Grendel
            A lot of the rules surrounding donating blood do not hold true with donating marrow - there are a list of things that can prevent someone from being selected to donate stem cells, and a list can be found below. However, there is a medical examination process for potential donors that plays an important role in deciding whether or not someone can donate.

            But again, the rules for donating blood do no translate to donating marrow... common question / misconception.

            Here's a link that identifies potential disqualifications:

            http://www.marrow.org/JOIN/Med_Guide...oin/index.html

            http://www.marrow.org/JOIN/Med_Guide...Men/index.html

            He was referring to that when he said "outdated lifestyle rules".
            Last edited by HighWiz; July 6, 2011, 19:44.
            And I heard a voice in the midst of the four beasts, And I looked and behold: a pale horse. And his name, that sat on him, was Death. And Hell followed with him.

            Comment

            • Grendel
              Member
              • Aug 2006
              • 91

              #36
              Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

              Originally posted by HighWiz
              http://www.marrow.org/JOIN/Med_Guide...Men/index.html

              He was referring to that when he said "outdated lifestyle rules".
              Gotcha... Yeah, that's lame.

              Comment

              • eris
                Giving birth to a star
                • Aug 2005
                • 703

                #37
                Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                Originally posted by Grendel
                Gotcha... Yeah, that's lame.
                Until the FDA changes it's guidelines I am going to guess it affects funding and grant possibilities if they don't toe the party line. No less lame.
                "They-Who-Were-Google are no longer alone. Now we are all Google."

                Comment

                • eris
                  Giving birth to a star
                  • Aug 2005
                  • 703

                  #38
                  Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                  Originally posted by eris
                  IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                  Lots of people know Barkode. He is one of the masterminds behind the ever popular, invite only, Ninja Networks Party held every year at DefCon. He codes those fantastic badges we all covet so much each year. He’s one of only two “ginger” Goons.
                  Consider this a retraction of some bad information I received. Barkode has never been a Goon. My mistake, my apologies.

                  Please continue to check the tumblr for updates and please consider donating blood or becoming a marrow donor. It's just the right thing to do and you may be a match.
                  "They-Who-Were-Google are no longer alone. Now we are all Google."

                  Comment

                  • eris
                    Giving birth to a star
                    • Aug 2005
                    • 703

                    #39
                    Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                    Originally posted by eris
                    Please continue to check the tumblr for updates and please consider donating blood or becoming a marrow donor. It's just the right thing to do and you may be a match.
                    He's GOING HOME today! Victory for Zim, er Barkode!


                    While this probably means he is "out of the woods" for a little while, he still needs care, meds, and a bone marrow transplant. It is only his lungs that are well enough to release him from current hospitalization. He still needs help. Please read above and keep it in mind.

                    If you search #BloodKode on Twitter you will be able to follow an ongoing conversation regarding a drive for assistance (blood donor, marrow donor) at Def Con or in Vegas at the time of Def Con. @deviantollam is organizing this one. Keep in touch.
                    "They-Who-Were-Google are no longer alone. Now we are all Google."

                    Comment

                    • Jayson.Street
                      Member
                      • Jul 2011
                      • 37

                      #40
                      Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                      Finalizing details of the impromptu Contest/Blood Drive will post details Friday night looks like some blood will get you a chance to win fabulous prizes & the chance to see people you may not know in the community get a Mohawk (though the best prize is a healthy BarKode) ~;-) #BloodKode

                      Comment

                      • Jayson.Street
                        Member
                        • Jul 2011
                        • 37

                        #41
                        Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                        The update that was promised but not everything is final.

                        1. We have a Blood Center that has agreed to hold a blood drive at the Rio for Fri & Sat
                        2. We are still working on the issue of space the DEFCON Crew are trying their best to accommodate the sudden need of an extra 1000 sqr ft the donor area would require.
                        3. Geo S is also looking at the Rio for a possible alternate site to host the blood drive.
                        4. While there is a valiant efforts being made by everyone the fact is the blood drive onsite might not be able to happen on such short notice.
                        5. BUT! We will have the #BloodKode Challenge where we have people donating before DEFCON & bringing proof they donated for BarKode with the chance to win * fabulous* prizes ~;-) The Grand Prize is of course is BarKode being better we will never lose sight of that!
                        6. We will post rules & full details of everything next week after we get confirmation of a few loose ends.
                        7.If you have prizes you are willing to donate or willing to get a mohawk if the goal is reached please let me know.
                        8.wish list for prizes;
                        1 Ninja party badge
                        2 T-Shirts
                        3 Books (would be nice if signed by author)
                        4 Swag
                        5 anything else I haven't thought of ~:-)

                        Lets DO THIS!! ~:-)

                        Comment

                        • qumqats
                          DEF CON groupie & goon
                          • Jul 2003
                          • 134

                          #42
                          Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                          I've never given blood before, but I'm sure I'm not the only one that wants to do this, so these questions may be of general interest..

                          As a first time donor, what do I need to know? What do I need to do? What can I do before I show up to speed things up?

                          Comment

                          • eris
                            Giving birth to a star
                            • Aug 2005
                            • 703

                            #43
                            Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                            Originally posted by qumqats
                            I've never given blood before, but I'm sure I'm not the only one that wants to do this, so these questions may be of general interest..

                            As a first time donor, what do I need to know? What do I need to do? What can I do before I show up to speed things up?
                            http://www.redcrossblood.org/donatin...y-requirements

                            http://www.redcrossblood.org/donatin...st-time-donors

                            Don't be drunk. Hydrate, hydrate, hydrate. Eat iron rich foods for a few weeks before hand. Eat a meal before you donate. Be prepared to show ID. Don't be drunk. Wear a loose shirt or a short sleeve shirt. Have I mentioned, don't be drunk?

                            One warning: If you give blood you must be aware that you are now a 15 year old girl if you drink after. You WILL NOT be able to hold your booze the way you are used to. HYDRATE.
                            Last edited by eris; July 9, 2011, 01:14.
                            "They-Who-Were-Google are no longer alone. Now we are all Google."

                            Comment

                            • Edw0rd
                              Member
                              • Jun 2010
                              • 5

                              #44
                              Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                              Please get in touch with us at MohawkCon, so we can get things rolling.

                              I suggest building a donation box in his name. :)
                              http://m.ohawk.me/hackerspace-challenge/

                              Comment

                              • converge
                                No Values Voter
                                • Oct 2001
                                • 3322

                                #45
                                Re: IMPORTANT: ‘VGR’ Creator Matt Lewis Needs Our Help

                                Mohawks for Matt isn't an outreach, it's a revolution.
                                if it gets me nowhere, I'll go there proud; and I'm gonna go there free.

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